Five places where you can get a hand with dementia and caring.
It might feel as if you are travelling alone, but look at these resources.
Health. Once you have been diagnosed you should expect support from your local health services, but you often have to ask. In Scotland there is a legal entitlement to one year of post diagnostic support in the form of a worker who can guide you round the system. Your GP might have a nurse with a special interest, or someone who can advise you about the local carers’ group. Don’t hesitate to ask your GP.
Find your local carers’ group. They may be listed on the site of Carers UK and many local carers’ organisations have a dementia carers’ group. This is where you will get all the local information about what’s available, and where the pitfalls are in your local services, so that you can avoid them. Just being with other carers can be great for your soul.
There are dementia charities across the UK offering a wide range of aspects including information about the latest research, details of other support services, information, and advice. They include.
Dementia UK including Admiral nurses
Ask the Social Work department for an assessment. In many parts of the UK this is currently very slow, so it is never too soon to ask. They may be able to guide you to and benefits and can tell you about home supports that are available, some without means testing and free. They may also advise you through their OT (occupational therapy) specialists about changes you can make in your home.
Don’t forget your friends. Friends and family are crucial at this time. People used to keep dementia secret, but there’s no need for that. Be specific about how they can help you, and allow them in. Look on the Prof June Andrews website as another friend, who has lots of information and can offer advice. You can also ask questions and why not suggest a topic for a blog?